TY, the MPS I patient, is practicing to sit up due to the MPS Christmas party on Dec 12th is coming.
However, her heart can't bear the loading without CPAP then causing the cardiac pain and in hospital to be observed now.
Sincerely wish the God blesses TY and she can recover soon. We will wait for you and your families to join the Christmas party.Wish God blesses TY and cheer up, TY' s mother.
Please join us to bless the MPS I girl and families. Thanks all of you , sincerely appreciate !

為了參加12/12MPS聖誕晚會，ㄧ型亭佑努力在家練習讓自己坐起來。結果沒有使用呼吸器造成心臟不勝負荷，引起疼痛不適到醫院住院觀察。
這樣跟生命奮戰的大女孩讓人也好心疼好不捨！亭佑加油！媽媽加油！聖誕餐會等著你們全家人一起來參加！請會員們朋友們也幫這位一型的大姐姐與家人加油打氣！感恩不盡！在此致意！

亭佑坐著需靠護頸支撐其脖子

馬偕醫院林炫沛醫師與其團隊