We
tried Risperidone for Georgia, to help with her panic attacks - I have to
say it worked wonders for her & completely stopped the panic attacks,
however, following her most recent hospital stay (12 wks ago) due to
repeated seizures, her neurologist immediately stopped the risperidone (she
didn''t realise Georgia was taking it at the time, as she had only been on it
for 4 weeks), as apparently it can increase the risk of seizures. So,
we haven''t used it since.
我們還沒遇到幸運的藥物。
丹尼Respirdone降低的閾值和發作癲癇。幸好我們在醫院裡發作,但我非常害怕。
他失去了所有可理解講話幾個小時(後來他的言語治療師向我解釋後,讀了腦電圖報告,丹尼講話如此severly受到影響,因為他緝獲來自大腦的''語音控制中心,以及其他地方)。
That was my last trial of behavior meds.。
我知道MPS2和MPS3不同,但我已經聽到其他MPS3家屬已成功。另一件事,我也開始考慮illiminate染料的食品之一,看看是否還幫助,因為我知道很多人誰已經與這些兒童敏感性和可能導致反應,像多動症。祝你好運!
原文如下:We used the patch for alittle while, but Kelley started having some sort of reaction, swelling, etc... so the doctor said to stop using and precribed apertine (spell) drops under the tongue. They work good, but seem to dry everything, scalp, skin, eye brows, etc so we use ALOT of lotion.