8月1日，我們迎來了一場充滿溫暖與希望的相聚。活動開放報名不到一小時即額滿，為了讓更多病友家庭參與，我們臨時加開名額、重新尋找場地，最終讓80位黏多醣症病友與家屬齊聚一堂。

很榮幸邀請 Dr. Raymond Wang — UC Irvine醫學院臨床副教授、CHOC溶小體儲積症計畫主任、美國臨床遺傳學暨生化遺傳學雙專科醫師 — 分享國際最新研究與基因治療進展。

演講後，王醫師更親自逐一與病童及家庭交流，耐心解答醫療照護上的問題，給予每個家庭專業而溫暖的支持。

On August 1, 80 MPS patients and families came together to learn, connect, and share hope. We were honored to welcome Dr. Raymond Wang, who shared the latest advances in MPS gene therapy, and personally met with each family afterward to answer their questions and provide thoughtful guidance on their children’s care.

Together, we learn, support one another, and keep hope alive.